"Damon isn’t just a boy with a fluke heart. He’s one of a new genre of human beings — children who have been saved from death by brilliant medical techniques. Alas, the brilliant doctors who perform the most experimental surgeries haven’t quite figured out how to care for these complicated children after they’re saved, or how to justify their compromised lives. They occupy new medical and ethical terrain. Doron Weber and his beloved son Damon were two of the pioneers there. "--Ian Brown, The New York Times

Maybe I’ve finally beaten this thing, maybe three years’ struggle will not have been in vain. Maybe this is finally over . . .” —from Damon’s blog, May 2004

A family's love lies at the heart of this gifted boy’s fight to survive. Born with a congenital heart defect that required surgery when he was a baby, Damon Weber lives a big life with spirit and independence that have always been a source of pride to his parents, Doron and Shealagh. But when Damon is diagnosed with a new illness as a teenager, his triumphant coming-of-age tale turns into a darker and more dramatic quest: his family’s race against time and a flawed heath care system. 

Immortal Bird is a searing account of a father’s struggle to save his remarkable son, a story of a young boy’s passion for life, and a tribute to his family’s love. It is also a story of the perils of modern medicine and the redemptive power of art in the face of the unthinkable.